Peter Saltonstall

• The National Organization for Rare Disorders (NORD) Names Peter Saltonstall New President.

Senior health care professional looks forward to building on NORD's 25 years of advocacy and support for those with rare disorders WASHINGTON -- The...

• Business Wire
• May 05, 2008

• Nord Praises Ssa for Expanding Program to Help People with Devastating Diseases

Compassionate Allowances Program Provides Expedited Disability Review for Patients with Severely Disabling Diseases WASHINGTON, Dec. 6, 2012 /PRNewswire-USNewswire/ -- Peter L. Saltonstall, president and CEO of the National Organization for Rare Disorders (NORD), today praised Social Security Commissioner Michael Astrue and his staff for proactively establishing and expanding a program that "demonstrates true compassion for Americans with seriously disabling rare diseases.

• U.S. Newswire
• December 06, 2012

• Fda, Medical Device Industry and Nord Announce New Public-Private Partnership

First-ever PPP Created to Focus Exclusively on Advancing Medical Device Regulatory Science WASHINGTON, Dec. 3, 2012 /PRNewswire-USNewswire/ -- Senators Amy Klobuchar and Al Franken joined Food and Drug Commissioner Margaret Hamburg, MD, NORD President Peter L. Saltonstall and others today in a Capitol Hill event to announce the launch of a new public-private partnership aimed at promoting the development of innovative medical devices for patients.

• U.S. Newswire
• December 03, 2012

• Millions Around World to Observe Rare Disease Day On Monday

WASHINGTON, Feb. 22, 2011 /PRNewswire-USNewswire/ -- A coalition of more than 500 U.S. patient organizations, medical societies, government agencies, and companies will join the National Organization for Rare Disorders (NORD) in observing Rare Disease Day on Monday, Feb. 28. At the same time, corresponding groups around the globe will be doing the same thing. People with rare diseases remain a medically underserved population," said NORD President and CEO Peter L. Saltonstall. "Studies have shown that it often takes several years to get a diagnosis. Little or no research is being done on many rare diseases. And, even when there is a treatment, patients often have difficulty accessing it because of reimbursement or other issues.

• U.S. Newswire
• February 22, 2011

• Social Security Is Fast-Tracking Some Rare Disease Claims

WASHINGTON - In an effort to ease the burden of being stricken with a debilitating condition, the Social Security Administration is expanding a program that fast-tracks disability claims by people who get serious illnesses such as cancer, early-onset Alzheimer's and Lou Gehrig's disease - claims that could take months or years to approve in the past. While providing faster benefits, the program also is designed to ease the workload of an agency that has been swamped by disability claims since the economic recession a few years ago.

... where you can't physically work," said Peter Saltonstall, president and CEO of the National Org...

• Telegraph - Herald (Dubuque)
• December 06, 2012

• Raise Your Hand to Support People with Rare Diseases

Lundbeck drives rare disease awareness and research with a month- long fundraiser leading up to Rare Disease Day 2012 Generate a big show of hands by visiting www.rarediseaseday.us and clicking the "Raise Your Hand" icon - then share with friends via Facebook and Twitter

... nearly 30 million Americans,"1 said Peter L. Saltonstall, NORD president and CEO. "We are ve...

• Business Wire
• February 08, 2012

• Nps Pharmaceuticals Observes Rare Disease Day 2012

-- Nearly one in 10 Americans live with a rare disorder -- NPS Pharmaceuticals, Inc.

... the support these patients need," said Peter L. Saltonstall, president and CEO of NORD. "We hav...

• Business Wire
• February 27, 2012

• Nord Submits Citizen's Petition to Fda Regarding Orphan Drug Reviews

National Organization for Rare Disorders Calls for Policy on Products for Rare Diseases WASHINGTON, Sept. 7, 2011 /PRNewswire-USNewswire/ -- The National Organization for Rare Disorders (NORD) has submitted a Citizen's Petition to the Food and Drug Administration (FDA) requesting that a documented policy be established regarding the review of potential treatments for people with rare diseases.

... not have an FDA- approved treatment," said Peter L. Saltonstall, president and CEO of NORD, a nonpr...

• U.S. Newswire
• September 07, 2011

• Alexion Joins NORD, EURORDIS and Other Patient Advocacy Groups in Supporting the Goals of Rare Disease Day 2011.

... difficulty finding medical experts," said Peter L. Saltonstall, President and CEO of NORD. "On Rar...

• Business Wire
• February 28, 2011

• Bill Offers New Hope to Rare Disease Patients, Nord Says

WASHINGTON, June 26, 2012 /PRNewswire-USNewswire/ -- Millions of Americans who have serious rare diseases and no treatment may face a brighter future as a result of a bill approved today by the U.S. Senate, according to the National Organization for Rare Disorders (NORD). (Logo: http://photos.prnewswire.com/prnh/20110719/DC37656LOGO-b)

...3187)," said Peter L. Saltonstall, president and CEO of NORD. "And we...

• U.S. Newswire
• June 26, 2012